Hadar, two months old, was born with a problem in the lymphatic system. The lymph fluids in her body did not drain, her stomach swelled and every day the doctors had to drain the fluids. Moreover, she could not eat, and was fed intravenously, was in pain, cried and could not breathe on her own.Many babies do not survive this condition. At some point the drainage causes an infection that their little body can’t overcome. Fortunately, this time the story ended well. Hadar’s parents, who initially stayed prematurely in one of the hospitals in Jerusalem, heard from the doctor who treated her that Dr. Assi Drobot, one of the few experts in the world in the field of lymphedema, works at the North Medical Center (Poriya) who is likely to be able to help them. The parents took her advice and turned to R. To their delight, he agreed to take on the complex challenge and decided to operate on her when she was only 6 weeks old. At the medical center, which recently received recognition as the only center in Israel that provides medical services in the field of lymphedema, they explain that the purpose of the surgery was to reroute the tiny lymphatic channels in order to give her a chance to survive.

A few weeks ago, little Hadar successfully underwent the operation that lasted about 7 hours, and she already looked better. She didn’t cry and her belly also looked less swollen. Although the road to her recovery is still long, today she is no longer connected to ventilators and was even released to her home this week.

 

A dangerous phenomenon

in an interview withmako health Dr. Drobot explains that the role ofThe lymphatic system is to drain the body fluids. According to him, children who have a drainage problem may suffer from fluid accumulation in the lung or stomach area. “Hadar suffered from a large amount of fluid in her stomach. She had difficulty breathing because the fluid pressed on the lungs, so she was breathing at any given moment. She was fed intravenously and had no stools at all.”

He also notes that Hadar underwent a test using a unique substance that is injected into the legs, which can identify the lymph ducts. “At this point we actually saw that the fluid was accumulating in the stomach. It was a congenital cyst.” The operation included, according to him, the connection of the lymph ducts to the veins of her legs. “The goal was to create a bypass so that the liquid does not enter the stomach. Meanwhile, there are a few successes in the world for this type of surgery. Happily, we were able to perform it on time because if we had delayed the chance of saving her would not have been high.”

According to him, these days Hadar manages to eat without intravenous feeding and according to the forecast, she is expected to develop and recover. “The body actually slowly learns to produce natural bypasses that prevent the fluids from entering the stomach.”

Her mother, Mor Cohen, points out that now the family is getting used to the new reality. “After a long hospitalization we are finally at home and thank God Hadar is no longer in a life-threatening condition. This is a baby who required drainage every other day and now she has been managing for days without a connection to feeding and without drainage at all. It is important to understand that drainage is a complex process that involves risks – in any They used to insert a needle into the stomach and give her antibiotics because it is a procedure that can cause infections. It definitely takes a stone from the heart to know that we underwent this operation.”

How surprised were you when you realized you had a baby girl suffering from such a dangerous condition?

“I was definitely surprised. The tests I underwent were completely normal, including the amniocentesis I performed. Towards the end of the pregnancy at week 34, I did an ultrasound and they saw water in the fetus’s stomach. From that moment on, I underwent many tests, including a genetic test that came out normal. Since it was not a genetic problem, there was no recommendation to stop The pregnancy. They told me that if it’s not genetic, they know how to deal with such problems. I thought it was a no-brainer, at most they drain the water after the birth and solve the problem. I didn’t want to give her up, she was born after prolonged fertility treatments.”

She also says that when Hadar was born, the family went through real hell. “We didn’t want to get attached to her because there was no hope that she would survive. We didn’t see the light when she was premature, she moved from drain to drain and couldn’t breathe on her own.”

Hadar’s father, Elad, also wants to point out that “Today, Hadar is already in a much better condition, but she is still not completely healthy. I hope that maybe doctors who work in the field will come to us after reading the article and be able to help her recover.”

By Editor

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